20 August 2017

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Greetings and Salutations my friends and family!

Wanted to share a general update… inviting you to follow me on Face Book, Instagram and Twitter (Steven Max Stern) as that is where I post my daily goings on… 

So what’s been going on apart from all that seemingly fun stuff I’ve been doing? 😉

Most recently we have been working on preventing further deterioration in my left eye. Macular Degenerative Disease as they call it. This requires shots of Avastin directly into the eyeball.  I know, fun! Actually, for most part, it’s not as bad as it sounds. I’d prefer to do other things with my time of course. I have my 5th shot (a double dose cuz i’m an animal) this coming month, and 6th the following month on the 17ths. So far it seems to be helping reduce the fluid and delaying the onset of other issues.

So, right eye, is as is. 90% blurry. Left eye, blurry but holding. I’m functional let’s call it!

Jaw is continuing to heal itself and the bone is coming out. This/my doctor (one of 5) is very happy as it is as he’d want it to be in a perfect world. Just checked it this past week and it should be coming out any day now or so-ish. Hopefully my teeth stay in, the bone pops out from where it’s coming up inside my lower left gumline and is causing them to teeter. However, the doctor and dentist who cleaned my teeth today, both say the teeth seem like they are holding their own. Word. I continue to take an antibiotic every day to prevent bone infections until we’re all clear.

Brain tumors are considered “inactive” and nothing new as of last MRI. Next MRI is this coming early Sept.

Body tumors are considered in ‘controlled disease’ status as of last CT. Next CT is this coming early Sept.

As systemic treatment (and also keeping tumors in the brain at bay which is amazing break-thru in this field of treatments) – I am still on the Alecensa pill, chemo treatment 2x a day, starting 15 months now… … … … … … It has its issues, as do most things, but I am pushing it to the limit along with everything else I am trying to do (within some reason of course!)… … … … … …

My primary doctor (Oncologist) and I meet middle of September to review everything and see what’s next… which i continue to focus on.. health, happiness and wealth.

In the meantime, much love to you all and safe journeys along your path.

1 ❤

Steven – Stevie – sms

 

 

 

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14 June 2017

Hi Everyone!  Wanted to post an update on current status as I have just finished 2 weeks of pokeyprodies and assorted other tests and doctor visits 🙂

1) CT – shows body is stable, report quotes summary, “stable disease”.  Next test cycle is September.

2) MRI – we are waiting on report but believe it to be clear as before.  Next test cycle is September.

3) Jaw Necrosis – healing but pushing out some teeth as the bone comes out. have to wait and see.  on daily antibiotics, with no break, in order to assist with healing.  Ongoing monitoring.

4) Eyes –  right same, 90% gone. left, 3rd avastin injection to prevent retinal detachment over time. seems to be having some effect on stopping the decay.  too soon to tell.  Next test cycle is August.

5) this is an AMAZING report and my Doctors are all very happy to say the least and impressed that i’m actually like this and, a ‘song writer’ and ‘musician’ … stranger things have happened in life for sure… but i must say, this is a miracle on top of miracles on top of miracles… amen.

Friday is my 48th Bday! (June 16, 1969).

Saturday night i fly out and will be joining my band on the bus, The Wailers.  From June 20th thru July 24th – I will be on tour, in Miami, recording in studios, writing more songs, making documentaries, videos, meeting more amazing musicians !!!  and this is just the start.  In mid-August, you will note, we will be touring in Europe (UK, Netherlands, Italy, Germany…)!!!

https://www.thewailers.net/tour/  

Lots of pics, videos and other assorted fun things coming soon!!!

That is it for now.  I think a solid and positive note to sum it all up for all ya’ll.

Keep smiling, keep shining and never stop dreaming.

Lots of love and positive vibrations to you all!!!

Steven

10 May 2017

Wanted to share the latest regarding my medical status along with lots of links to magical things going on!!!

  • Overall my body and brain are under “control”.  This means that the tumors are sitting still, maybe shrinking a little bit and/or just in a static mode.  This is very awesome.  I’d like to see the shrinking but I won’t complain.  We are on month 10 of the biological treatment/drug Alecensa.
  • I am still losing sight over time, right eye is “stable” – the nerve is about 90% dead and not supposed to regenerate.  This means the right eye is about 90% blurry and fairly useless.  My left eye is receiving Avastin injections in order to save it from Ocular Degeneration, in other words, my left eye feels old and is just tweeking out now.  The shots are to prevent/slow down the deterioration and stop retinal detachment.  We will ‘see’ what happens in time.
  • I am on antibiotics for my jaw, every day, on a 180 day cycle.  My jaw bone (lower left) had a necrosis due to the XGEVA shots to strengthen my bones from the tumors.  My jaw is healing and a bone is actually coming out on the inside of my lower left jaw, like a BIG wisdom tooth.  This is amazing!  It also might push out 3 or 4 of my teeth.  This is way more preferable than having part of my lower left jaw removed.
  •  Next rounds of MRI, CTs and doctor consultations are between June 1 and June 15.  My next cycle with my eyes will be around August.

In the meantime, I get on an airplane this Friday morning (the 12th) to go back to Miami to go on tour with The Wailers.  I am a part of their family now after all! 🙂  Let the new chapter, new book begin!!!

So here are some links to some of the magic I am starting to get into!!!

1Love 1Heart ❤  -sms

http://www.thewailers.net

http://www.bookingentertainment.com

http://www.badlions.com

Eli Marcus IDC International Radio:

Article on The Wailers website:
https://www.thewailers.net/the-accidental-miracle

Book:
http://www.ourboox.com/books/concerned-about-the-human-race/

Video:
https://m.facebook.com/story.php?story_fbid=10155940065994992&id=740679991

FaceBook:
https://www.facebook.com/SpaceClown

LinkedIn:
http://il.linkedin.com/pub/steven-max-stern/0/186/489/

Update – 23 March 2017

Hi All,
Just a brief update after latest rounds over the last couple of weeks.  Approaching 2.4 years since Nov 27 2014.
  • Into 9 months of systemic treatment with Alecensa, body tumors remain more or less stable.  Next CT in 3 months.
  • Brain MRI is good. Dr sees nothing new! Next MRI in 3 months
  • Left eye is accumulating liquids again and losing sight. Will start 2 rounds of Avastin injections to try control this, and track after etc. with typical follow ups.  Right eye is the same since last year, impaired, blurry but stable.
  • Jaw is still requiring antibiotics on and off, just went on again past week for 90-180 days.
Doing ok considering! 🙂
 
I didn’t get into AGT this time around.  Oh well!  Had a great time in NYC anyway!!!
 
Also, I was told and encouraged by many of my friends and family members, a lot of them you, readers of my blog, that I should write a book.
 
So I did!  There are a few chapters missing, by design, with title only, leaving some things to the imagination.  There is more to come in some way, shape and form.  
 
So you are getting it first (see link below), done on a simple book publishing platform.  I hope you enjoy!
 
Love,
Steven
 

Hello2017

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Our whole lives, we are told to dream, and when doing so, to dream big. True! Amidst all the craziness, I found something to focus on for 2017… So, hello New York!

Look forward to sharing more in the coming days…

With lots of love, health, happiness and wealth for the new year to all ya’ll!!!

2Years

healthwealth

It’s been awhile since my last post and I wanted to give a brief status update, especially as this month, Nov 27 will be 2 years since my diagnosis.

You may recall that I started systemic treatment just into the New Year for 2016. If you don’t, it’s true, I did! Those little pink pills, twice a day. Biological chemo. They were lending a helping hand for the first couple of months, packed a punch when taking them and at about 3 ½ months into it started being toxic / or my body rejected them / or they stopped working / and the cancer started spreading again.

Whatever it is, around March thru June I crashed pretty hard. It was a rough period of time which haunts me (usually from a distance), yet is another thing that encourages me to appreciate things in life a bit more profoundly.

So towards the end of June I stopped taking my little pink friends and switched to little white ones. They are a newer biological medication (Alectinib) which has been much more gracious so far.

In technical terms, latest results show a reversal of the previous trend of progressions seen in the April/May cycle of tests:

  • Body CT – shows slight tumor recession in some areas and overall stability
  • Brain MRI – shows 2 newer tumors have disappeared
  • Left eye checks – show the newer tumors to be inactive (their term for ‘dead’)
  • Right eye checks – remains unchanged, vision expected to remain ‘impaired’
  • Jaw – the antibiotic, Doxylin, the stuff they give to people exposed to Anthrax, and kids with Zits among other things. In my case, for 90 days to treat a bacterial infection on the lower left side of my jaw triggered by a ‘drug induced’ bone necrosis (i.e. dead bone). It’s a possible side effect of monthly chemical treatments to strengthen bone. Seems better and hopefully can stay off antibiotics and avoid any surgeries.

All of this will be rechecked and revisited over the next weeks, month(s), year(s)…

I am also happy to say I managed to get back into the pool in August after a long 4 month hiatus. I started by walking in the water about 20 minutes several times a week and have built up to a 1-2k swim.

Issues and pains aside, considering everything, I am doing remarkably well and feel pretty good! Could be better, but could be much worse AND I get to eat tasty food again. Never underestimate this.

With much Love,

Steven